1. Name and Aims

    1. The Association shall be called “Muscular Dystrophy Group (Malta)", 4, Gzira road, Gzira GZR 1313

    1. The Group is an autonomous and non profit making organisation

    1. The aims of the Group are:

      1. To assist/help persons with muscular dystrophy or allied neuromuscular conditions and their families
      2. To improve the physical, mental and social state of these persons by providing them with a good social environment
      3. To bring together the families concerned so that they can share and gain from each other’s experiences
      4. To promote research into the origin, prevention, cure and management of this condition
      5. To raise national awareness on the needs of these persons and to bring these needs to the attention of the competent authorities
      6. To affiliate with local or foreign similar associations to better achieve its aims.
  2. Association of Members

    1. The Association is made up of persons with muscular dystrophy or any other related neuromuscular condition, parents or relatives of the same persons and members of the public who sympathise with them and their demand to obtain what they deserve socially
    2. Each member is bound to abide by the rules as stated in the statutes. The statutes may be changed as the need arises at a General Meeting (Conference).
    3. Persons with muscular dystrophy, parents and relatives have the right to become members of the Group as soon as they apply.  Others have first to be accepted by the Committee.
    4. All members except persons with muscular dystrophy have to pay a membership fee of €5 (euros) per calendar year and only paid up members will have the right to vote.  The membership fee may only be changed at a General Meeting.
    5. Persons with muscular dystrophy over the age of sixteen have the right to vote.
    6. All members should be provided with a copy of the Statute.
  3. Policy

    1. The authority of the Association is vested in the General Meeting which elects a Committee to implement the work of the Group according to the statutes.
    2. The election for the Committee takes place at the Annual General Meeting.
    3. The Committee is made up of a Chairman, Vice Chairman, Secretary, Treasurer and five members and includes a Social Worker and a Medical Adviser as ‘ex-officio’ members.  One third of the elected members have to be persons with muscular dystrophy.
    4. Only one member from a family may be elected on the committee accept in the case of persons with muscular dystrophy.
    5. Each elected member on the committee has the right to stay on for two years in such a way that only half the Committee has to stand for election at every Annual General Meeting.
    6. At the Annual General Meeting the members of the Association must elect the Chairman and the Secretary, and one of these posts has to be contested every year.
    7. The Committee has the right to take urgent decisions that are not contemplated in the Statutes.  The decisions then have to be ratified by a simple majority at a General Meeting.
    8. Since the setting up of the Youth Group within the MDG, the Committee must also include a representative of the Youth Group.
  4. Duty of the Committee

    1. The Chairman has to preside at meetings and sign the minutes after these have been confirmed.  It is the responsibility of the Chairman to see that the rules of the Association are observed.
    2. The Vice Chairman assists the Chairman and acts as his substitute in his absence.
    3. The Secretary is a senior official on the Committee and is responsible for the implementation of all decisions taken by the Committee.  He has to see to all correspondence and to keep an updated list of members and property of the Association.
    4. The Treasurer is responsible for all financial matters, dealing with the income and expenditure of the Association.  Any payment exceeding €25 (euros) has to be done by cheque signed by the Chairman and Treasurer.  The Treasurer must not keep more than €500 (euros) as petty cash.  At the Annual General Meeting, the Treasurer must present a detailed statement of accounts for the period 1st January – 31st December.
    5. One Committee member is to be responsible for Public Relations and to keep contact with families of sufferers.
    6. Every member on the Committee has the right to seek information from the Secretary and the Treasurer regarding the administration or funds of the Muscular Dystrophy Group, which information should be given in the shortest possible time.
    7. The Chairman has to appoint an Auditor C.P.A.A. to examine the books each year and the Auditor’s report should be presented to the Committee before the General Meeting.
    8. The Auditor may ask the Secretary and the Treasurer for any document relative to the administration and finance.
    9. Reference to “male” is substituted by “female” for any post occupied by a woman.

Addenda to the Statutes

  1. Rules regarding every General Meeting

    1. Between January and March every year, a General Meeting must be called.  At the Meeting, the minutes of the previous General Meeting are read, the Chairman makes his address, the Secretary reads the administrative report and the Treasurer the financial report.  The Chairman announces which posts on the committee are vacant for that year’s election.  He then asks the members present to appoint two persons who are not contesting the elections to direct to elections; their decision will be final.
    2. The members with the highest number of votes will be elected.
    3. At least two persons with muscular dystrophy must be elected on the Committee.  If this does not happen, two persons with muscular dystrophy must be co-opted.
    4. If two or more members get the same number of votes there should be an election to choose between them.
    5. The Association may be dissolved at an Extraordinary General Meeting called for the purpose.  At that Meeting, all property it owns physical or monetary, has to be disposed of.
  2. Rules regulating every Committee Meeting

    1. For each sitting to be valid the quorum should be of no less than ? of elected members plus one.
    2. When neither the Chairman nor the Vice Chairman are present, the members appoint a Chairman for that sitting.
    3. In the absence of the Secretary, the Chairman has to appoint some other member to take the minutes.
    4. A meeting must be held at least once a month and each time there must be an agenda.
    5. Each meeting should not exceed ninety minutes except in exceptional cases when a motion has to be passed to allow the meeting to go on beyond the stipulated time.
    6. Every member should be allowed enough time to express himself freely.
    7. Every normal sitting should start with the reading and approval of the minutes of the previous meeting.
    8. Every member has the right to pass a motion to add to or change the agenda.
    9. The Chairman has the right to halt a discussion about some item and adjourn it to the following sitting.
    10. If after a discussion about some item a decision has to be taken, a vote must be taken.  This can be done by a show of hands if everyone agrees.  If someone disapproves, it should be done by secret vote.
    11. If after voting the decision cannot be taken because there is no majority, the Chairman can use his “casting vote”.
    12. Any member who fails to attend three consecutive meetings without a valid reason, which satisfies the Committee, will be removed and replaced by the person who had got the next higher number of votes in the last election.
    13. If a vacancy in the Committee arises, because of the resignation of a member or for any other reason the results of the last election should be considered to fill the vacancy.  The candidate who is next on the list showing the number of votes obtained will be elected.  In case there are no contestants, the Committee can co-opt a suitable person to replace the person who leaves.
    14. The member chosen according to article (xiii) shall remain on the Committee for the remaining part of the year but will not necessarily be given the duties of the outgoing member.
    15. The Chairman can present a motion for a person or persons who are not members of the Committee to attend a particular meeting.  These persons will just have Observer Status.
    16. Any activity undertaken in the name of the Muscular Dystrophy Group has to be reported to the Committee immediately.
    17. The Committee has to refund expenses made for the needs and aims of the Group.
    18. The Committee has the right to suspend or expel from membership any ordinary or Committee member by a secret vote of not less then two thirds of the members present.  The member in question has the right to appeal at an extraordinary General Meeting called within a week.  The decision is to be taken by a simple majority.
    19. If the Muscular Dystrophy Group is dissolved the Committee Members at that time will decide between them who will be the autonomous and non profit making organisation that will get the money remained.